Biopsy is over and no results back yet, BUT-----
From the blood tests of first blood clot/hospitalization we have a very possible answer.
Missing proteins (inherited issue) in the blood which affect clotting. Doesn't look to be something that can be "fixed" but more likely prevention of new clots forming with blood thinners for his lifetime.
Also likely-- testing of ME-- to see if I have this/carry it so we know if the other bio kiddos need to be tested. We have a blended family so if I am not the carrier then it will affect fewer children and not my siblings or their children, therefore easier to test me first.
I always had in the back of my mind the concern of "no family health history" for our adopted kiddos was so scary, an unknown. Goes to show there's no guarantees in life, in adoption, in genes inherited.
Never would have expected this but so incredibly thankful for all your prayers-- they really, really helped. I'll update if any results of biopsy come back with anything but I believe the doctors are fairly sure this is our answer to the mystery of the blood clots.
Thanks again for your support and prayers- it really means so much:)