Sunday, July 20, 2014

Dedication


Guess who decided to dedicate her life to God today?

 Our precious Paisley girl, that's who.  We couldn't be prouder of this huge step she has taken in her life.

To know that she has Him in her heart just makes us so happy for her.

She is such a wise ol' soul sometimes, her many physical challenges and living with daily pain has placed limitations of what her physical body can do but her spirit soared today as she accepted Him as her Savior.

She just SHINED with the joy in her heart.

She is VERY LOVED!

I wanted to be sure and follow up on the post of "You shouldn't adopt a teen" with everyone because these kids are so incredibly important and special to us. Every single one of them.

The post was not written to discourage adoption AT ALL. 

No way. 

Please DO ADOPT. Just PLEASE, be prepared. I can't say it enough--- you gotta be ready for the behaviors. Just to know they are typical, normal, others are making it through can take you VERY FAR when you are suddenly living it with a new teen/ child adoptee.

Expect the behaviors and then if you don't get them, YEAH!!! Good for you--- whooo hooooo!

But honestly (you know I am) I don't know many who do not have ANY of the adjustment issues I mentioned. And the very few I do know of --- they are definitely a minority:(

BUT--- here's the good news..... all of the issues mentioned in previous post-- they get better with TIME.

They really, really do.  It's the "getting there" that's super hard.  It DOES get easier/ you learn to cope better.

If you met our kids today, home 7.5, 5, 4, 2.5 and 1.5 years--- you would think they are younger than their number ages, if I told you them. Otherwise, you would see polite, kind, fun to be around, neat kids. Seriously.

While we will be a "work in progress"  probably forever, they have ALL made huge strides in learning the language, culture, how family works, what we expect of them, empathy for others.

There are still some who have more issues than others. But honestly, we have changed with adopting the 6 of them to understand we may not see what we hoped for with some of them and gone the way of lowering expectations/ acceptance of the limitations because sometimes that's how it goes.

Our commitment and love for them will remain steady and we will always want the best for every single one of them.

I was able to write the post with the experience of parenting the 6 of them, but also because I do not have to  (and will not)  point out or embarrass any one of my 6 adopted children because some of the points made we do see with some but not others. Some we see with all of them at first. Some adjustments are long term for some. I will not now or ever sit down and point out who-has-what-issue because I have NO desire to shame any of them.

Matter of fact, Chloe (and sometimes Kat) read my blog and they had no issues with the post. Chloe will bring up sometimes things she "used to do" and we laugh because some of it really is downright funny, but also because it's fun to see how far she has grown. They all have and will continue to do so.

In some ways, home as long as they have been now,  they ARE like typical teen kids. Our kids. Not "our adopted kids from China." Not "former orphans."  They are different and special only because they are individuals. Each one of them special because of who they are, not their "issues." 

 They are proud to belong to BOTH countries, their birth country and their "family" country.  They are---

Fun loving. 
Inspiring.
Happy.
Kind. 
Amazing.

I could just go on and on:)  So for those of you who are considering adopting an older child/teen or are living with an older adopted child and you have any/all of the issues from the previous post--- please know there is HOPE.

It doesn't ALWAYS get better, but you learn to cope. You find a new "normal" life. It really IS a blessing to have them. We can't imagine life without them at all. We are honored to parent them and very happy to help others adopting as well.

And to answer Sarah's question in the comments-- Therapeutic foster training is training you can take for fostering special needs children in the US.

 Contact your local Child and Youth Services and ask them about agencies who do the therapeutic care for them. (Most CYS special needs kiddos are fostered through a contracted agency outside of CYS) and then go to the trainings the contracted agency offers for fostering SN kiddos.  (usually these classes are FREE). 

You are NOT required to ever take SN foster kiddos here, but you will have the training which is very, very helpful because it's geared for parenting traumatized children with a variety of different issues.  This applies to ALL states for anyone else who is wondering.

Adoption is an amazing adventure, not always a blast, but an adventure for sure. And a blessing from God.

 Always.

Friday, July 18, 2014

You shouldn't adopt a teen-------

How ya liking that cool header Savvi did for me again?? Pretty neat girl, that Savvi. Thanks again to her for keeping us "up on the times." Aren't the "kids" all looking so grown up?  Sigh......

Now-- I gotta tell you all some things that have recently been on my mind along with some conversations with some other moms of teens adopted from China.

And it SEEMS soooo complicated.  HOW do you know you are ready to adopt a teen?? One mom even asked me how I ever thought they were ready to adopt a teen, out-of-birth-order child when she first contacted me.

And I told her honestly-- "After I warned you about everything you didn't run screaming."

Seriously- they were still willing to take it (no matter what IT WAS) on.

So how do you know if you SHOULDN'T adopt a TEEN?

Here's some clues--(speaking on what I know here so it pertains to China teen adoption)

1.  If you expect undying gratitude for adopting a teen- You shouldn't adopt a teen.
They are losing everything they know, you are causing them TRAUMA, even to give them a "better" life.

Some do NOT want to be adopted and there's no way to know if they do or don't.
They don't KNOW any other life so they don't see what they have as terrible so don't think they are coming to you being thrilled about this new life and that they will show you ANY gratitude. Even "thank you" and "please" are not standards in China like they are here. If it annoys you to no end to never hear "thank you" you are gonna need to do a LOT of work to make it a habit and if that's a deal breaker for you .............. you might want to reconsider if you are up for this. 

2. If you are expecting to adopt a 11, 12, 13 year old (even down to babies this really applies to ALL adopted kids) and think they are going to be their number age in maturity and you EXPECT them to act that way any time soon----- You shouldn't adopt a teen. These kids will have YEARS and YEARS that they lack maturity and do not "catch up" for a very, very long time, IF EVER.

You very well could have a 20 year old who may/may not be able to graduate school, can't fill out job applications on their own, have no job history/driver's license or even motivation to work to support themselves. They may read at a 3rd grade level yet think they are going to become "famous" and be a movie star. There's huge gaps in the REALITY of life/taking care of themselves. Teen adoption is a longgggg haul commitment, not "Get them to 18 and phewww, we are done." Nope, not gonna happen. If you are cringing at the thought of your 20 year old thinking they will be the next Jackie Ch*n ..................then you might not be ready to take on a teen adoption.

3. If you are adopting a teen to give another child in the family a "buddy"---- You shouldn't adopt a teen.  Again--These kids lack maturity and the 12 year old you think will be a great pal for your 11 year old at home, will be about 5 year old behavior in China, and 6-7 year old behavior for a least 6 months, gaining slowly up to about 11 years old behavior home 2-3 years, maybe even 4-5 years post adoption, so they will NEVER be the same maturity. 

Adopted child may even be annoying to sibling and jealous of same age sibling along with the issues of having one child who is ready to drive, have a cell phone, computer usage, etc. and often adopted teen is NOT ready for those things at the same time. You DO have to be prepared to parent per their maturity age and not number age and take the heat for them not being allowed the same things sibling (or kids at school) are getting at certain ages.

Your new teen WILL count everything, even down to BEANS on their plate compared to sibling and even YOU. Do you have more than them?  Do you not love them as much????  If the thought of hearing "Why does so and so have MORE?"  every single meal drives you nuts........... you might not be up for teen adoption.  

4. If you don't get that this is a hormonal teen with toddler behaviors at first and you are inpatient/ unable to have tolerance of that-- You should not adopt a teen. Yes, they will bawl, hit, scream, pee, fight, ignore you on purpose, cause you to cry, act out, try to manipulate you in to buying them everything.  You GOTTA have tolerance and patience with these things.

As well you gotta understand they have hormonal changes and all that comes with that and may not have any clue how to take care of those personal issues (periods). You may have a child who knows NOTHING about their body or how it functions, or in the rare case, you may have a child who has been abused/ seen things they shouldn't. You HAVE to HAVE a plan in place to keep younger siblings safe. Baby video monitors, door alarms, even your local crisis center number and how/who to call if you need immediate help and it's Saturday night.  If this seems overwhelming to you and you can't imagine living "like that"...................... you may not be ready to adopt a teen.

5. If you expect great table manners and good hygiene to be the norm--- You should not adopt a teen.  It's totally cool in Chinese culture to slurp, throw food on the table, eat and run (so if you take your time they will find messy things to do at the table since they are DONE and done fast), it's not the norm to shower daily, use soap, use deodorant, even change clothes daily.

 All these things can be worked on, but some WILL take time. Especially that slurping habit!!  If this drives you bonkers.................... you might want to reconsider if you are up for adopting a teen.

6. If you think you will get a child well prepared for adoption and who comes lovingly in to your arms-- You should not adopt a teen.  They may/may not get what "adoption" even means. Usually it's a MAY NOT-- they think they are coming here for education, days filled with gifts, Disneyw*rld, riches galore, opulent rooms just for them. They don't get chores, siblings being equals, they have false ideas of what our lives are like and what we are adopting them for. From crazy stories like organ harvesting to cleaning/babysitting for us-- there is little understanding what being a child within a family MEANS.

Often they don't even like the sight of us-- we are different looking. We smell different. We talk different. Even smiling at them we are scary.  They don't understand why we want to adopt them and most are told we will send them back if they are not "good" thus causing 1 of 2 reactions-- extreme fear (acting out, crying, peeing, hitting, screaming, running, etc.) or shock (totally zoned out, scared to death, afraid to upset you, crying.)  If you don't think you can handle this craziness for your China trip and until you can show them with TIME that you are okay and get them to understand you aren't sending them back EVER.................... you might not be up for adopting a teen.

7. If you think you will have personal space for the next 6 months (or year and a half) -- You should not adopt a teen.  There's no personal space in China and they will be rough, in-your-face, on your lap even, touching everything, grabbing things they shouldn't, trying to nose in on everything that's happening and even be a part of it all no matter if it pertains to them or NOT.  You have to work on this slowly to teach them in this culture we value our personal space and they will offend people if they don't get this.

There's soooo many things we have to teach the teens that you wouldn't think of having to teach.  Orphanage care encourages NO thinking. Don't ask, fall in line, do as you are told and do it fast, don't get called out or you are in trouble--  that's orphanage living. Even correcting a teen can bring BIG, HUGE issues when they decide everything you tell them to correct them is "yelling" at them.  And since they are living in this culture it's really no less than cruel to NOT teach them how to get along here. Because they will be offending people/ unable to make friends, get jobs, marry if they aren't taught how things work here. It takes a lot to work through this and it's not a one time deal, it's LONG TERM. If that sounds daunting to you................ you might not be ready to adopt a teen.

8. If you have no idea what ESL means-- You should not adopt a teen. Get familiar. English Second Language teacher. It's either going to be YOU-- if you homeschool, or your new best friend-- meaning the teacher stuck--- Ooops, I mean BLESSED-- to get your new teen to teach English to. Now understand, if you think your child is coming to you with ANY great school skills-- you will be greatly shocked. Schools are not free to all in China and orphan children are not placed in good schools. Some don't even get to GO to school at all.

They are missing HUGE chunks of skills, areas of learning,  even homework is an issue-- because no one pushed them to do it. Motivation- some come with it, others have NONE. You aren't going to PUT motivation in them. Ain't happening. YOU have to become your child's greatest advocate and you have to be open to more than "We homeschool and that's how it is" attitude. You may have a very social child who does better in a school setting. Or vice versa. Or have a school that is clueless how to teach your child and have to FIGHT to get them educated year after year after YEAR. Till they graduate and then they are usually 19, 20 + and may STILL not be ready to go to college, leave home.  And if you think you can't handle that......................... you might not be up for adopting a teen.

9. If you have unreal expectations that they will drive, babysit, even use common sense sometimes-- You should not adopt a teen.  They DO NOT catch up quickly. And if they have any issues- learning disability, speech delay, even just long term orphanage care for their history-- you are going to be looking at YEARS of "catching up." 

They will not likely be ready to drive at 16 if they come at 14. They will probably be reading at about a 1-2-3 grade level and about 10 in maturity-- so would you let a 10 year old drive??? If you can't grasp that, or even have issue with kiddos taking much longer than 18 to graduate/ be independent, heck even to leave them HOME ALONE can take years-- if this sounds insane to you empty nesters thinking adopting a teen and it will give you freedom to still go places alone...................... You might not be up for adopting a teen.

10. If you think your life will be "back to normal" anytime in the next 2-5  (possibly longer) years after adopting a teen-- You should not adopt a teen. Just because you raised ANY amount of biological children to successful adulthood paths do not, DO NOT think you are NOT going to be slammed by some issue/s with your adopted teen. There's gonna be something, probably more than 1 thing that will take your breath away, steal your joy, rob your hope and leave-you -in-the-bathroom sobbing. If you think this won't happen to YOU, you are stronger than this-- YOU ARE WRONG. 

Do not, I repeat, DO NOT have a false sense that you got this covered. NONE of us "had it covered 100%" and anyone who tells you they do is lying.  There's a common issue with teen adoptions- people don't want to admit how darned hard it is because others love a "happy ending" therefore there's all kinds of adoptive families out there thinking they are failing.

You are NOT failing. You are normal. There are days you feel you have done NOTHING right and all you can do is go to bed and pray and wake up to try again tomorrow. And being slapped daily in the face by issue after issue (or even the SAME issue day after day) wears EVERYONE down.

It's often years and a TON of strain on other kids, marriage, extended family, friends-- times when others do NOT get where you are at with this child/teen and trust me when I say it's a LONELY, LONELY place to be when you are doing the best you can but there's no sympathy from anyone directly in your life because YOU ASKED FOR THIS (it's the attitude you get because you CHOSE to adopt.)  You do not have an adorable, cuddly, bundle of joy. You have an acne laced, sharp tongued, razor eyed, raging teen who isn't CUTE to ANYONE. If you aren't thinking you will be ready to claim this "treasure" as your own...................... you might not be ready to adopt a teen.

11. If you think you will be "safe" because your computer is in English, you have firewalls/ parental guards and you actually believe nothing will ever "go missing" when you adopt a teen-- You should not adopt a teen.  You will be the parent whose laptop is suddenly in Chinese and you can't figure out how to get it back to English. Or the one who will have a heart attack when the bank calls you about "charges on your bank card" caused by your little darling. You may not survive the news that anything and everything that catches your little "sweetie's eye" has made it's way to a hidden "stash" that only your teen knows the location of.

Often teens have deep rooted fears (going hungry) coupled with little understanding of right and wrong, as well they want to make friends and will often give things away to try to "buy friendships." Some will do anything and everything to hide away in social media (Chinese movies, music, contact with former orphanage friends or foster family) to keep from having to accept the WORK it takes to become part of the family. If you don't think you can/will be able to become a sleuth of sorts to keep up on all your teen is going to try to pull on you..................... you may not be up for adopting a teen.

12. If you think your child is going to appreciate and respect your brand new ANYTHING (home, car, bedroom furniture, camera, I pad) You should not adopt a teen.  Pretty much EVERYTHING is "fair game" in the orphanages with cement walls and floors, steel doors being the norm. Slammed doors, broken dishes, burned up microwave from foil being put in it, lawn mower being broken-- you name it, they WILL break it.

If you have "nice things" and think you will "teach them" --- think again. Even your beloved pets, will you be able to handle your new teen who kicks your dog repeatedly even when you say NO and you know they totally understand you?  What about your other kids? Got another adopted child and think they will LOVE a China sister or brother? Try JEALOUS-- because that's what you will get. Jealous they were here longer, they have more "things," they are closer to you, they understand you.

If you do not feel you have the patience or can have the understanding of where the anger comes from and the mere thought of your precious poochie getting kicked or even worse, the thought of your much younger, tender hearted child getting secretly pinched, made fun of, told bad things about you/family makes your blood want to boil.......................... you might want to reconsider if you are really wanting to bring home a teen.

13. If you think your adopted teen will come with a full report and all needs disclosed, along with no issues from their past--You should not adopt a teen. You are not going to get a child with "orphanage issues only that can be LOVED away."  It's not going to happen. You can and will get undisclosed medical stuff, baggage from past relationships or lack of relationships. Even ones in foster care can throw things at you that you never expect. Teens come with layers of hurt. Some overcome this well. Some DO NOT. You have to guide them to learn how to overcome and keep going forward, not let their past (no matter how ugly or bad) cripple them. 

 And it's also ongoing, you WILL visit this over and over issue. Many times teens will RUIN celebrations here (we BTDT parents call them "traumaversaries")  because "Gotcha Day", birthdays, Christmas, sometimes one, sometime ALL gatherings turn in to melt downs, and not just on the day- we have seen issues up to a week BEFORE and AFTER those dates!   If that sounds wayyyy too hard for you..............you may not be ready to adopt a teen.

14. If you would never once consider letting ME (or anyone else you don't know) pick a child from US foster care system and send you a great picture of the child, a short phrase on their personality and a very general medical report and expect you to adopt that teen right away without meeting them--- You should not adopt a teen. Please understand me here--- you are getting a teen with HUGE unknowns.

 Understand, we think Chinese culture, medical issues, this "poor abandoned child" NEEDS to be adopted and love will make it ALL BETTER. This is NOT true. Children in long term orphanage care have the SAME trauma/issues as long term foster care here. Changes of caregivers, no real bonds, needs unmet, school lacking/lagging behind, no positive role models they get to stay with.  Add on top of that you speak a different language, are bringing them to a different culture, etc.

 Can it work? Yep, it can. BUT-- if you are unprepared for the issues-- Oh, not YOUR child? YES-- your child. Even when someone met them and said they are quiet, gentle?  Yep, quiet while they hid your things. Gentle while they are pretending to hug their sister and are pinching her on the side you can't see?

If you don't have a clue what you are going to do if this happens or even who to ask "Is this normal?" ..................... you may not be up for adopting a teen.

15. If you think you can dress them up in matching American clothes and send them off to school and they will make friends, be happy, totally FIT IN-- You should not adopt a teen. I hate to say this. But our kids have faced racism-- IN.THEIR.FACE racism:( 

You gotta be prepared to teach them how to cope with it. That it's wrong. You also will have people who will want to "baby them" thus allowing them to "get away" with stuff . (This happened at our school) The mentality is that they were "a poor orphan from an orphanage," so they need to be pitied.   It's a fine line from "my child needs help and consideration of their lack of language/understanding of this culture" to "teen is manipulating adults to get away with things." 

And if you think they don't pick up on who they can pull this nonsense on the easiest, or you don't believe me, you are in for a shock. I don't know ONE child who hasn't done this of our 6. NOT ONE. Parenting these teens is what one mom said to me---- "rehabilitating dysfunctional kids."  They really ARE dysfunctional. And lacking language.

They are street smart but that doesn't WORK in a family.  The family stuff is HARD to learn and they don't always WANT it once they get here and see how hard all this is.  What adoption really and truly means. As my friend and fellow momma said "If you are spending more time painting the bedroom and picking out curtains for their room instead of reading books/ blogs, talking to BTDT parents" (and I add in here) doing therapeutic foster care training, preparing the other kids for every realistic behavior that may come, lining up sitters................... then you probably aren't ready to adopt a teen.

Now, trust me. I am not an expert. I am a mom. Of 6 "older adoptive kiddos," including 4 adopted as teens. One of those adopted from a disruption.  So if you read this and say "That mom is crazy." You would probably be right about that.

And you CAN certainly ignore ALL of this and go ahead --- ADOPT A TEEN.

 I will be happy for another teen to gain a family and will hope and pray it all works out well for you. And trust me when you get in too deep one (or many) time/s and think "What were we thinking, we are failing at this, we didn't expect this, we don't know what to do-- why did we do this?!?!"  I will  tell you to reach out and ask for help. I WILL NOT judge no matter what, I promise. Because sometimes God calls and it doesn't make a lick of sense to anyone but YOU.

And I do NOT know more than Him, so if He really calls you to bring home a teen, then go for it. Just note my email addy at the top of the blog there and be sure to know I will probably say "Yep, I've BTDT" since there's not too much we haven't seen with our 6 and I will be more than happy to be a support to you/ give advice as you need in your new journey with your teen treasure. 

And yes, TREASURE. They are indeed. Worth every-single-time I've been reduced to a sobbing, sloppy mess crying on the bathroom floor. WITHOUT ONE DOUBT.

Lest I get too long written here, which this is already pushing it--- read back through the blog and see, the joy, the accomplishments, the hope, the fast forward parenting. The lessons. The blessings.The love.

 Our family.

 Each one meant to be. We have no regrets, not one, for adopting all 6 of our kiddos. But prepared? Yes. Willing to admit this is one of the hardest things we have ever done? YES. Stretched more than we thought possible? YES.

But again-- OUR FAMILY. The way God meant for it to be. Thus we keep on, keeping on.  With His guidance and love to ease this journey of a lifetime:)

Monday, July 14, 2014

Born in your heart

You just gotta hear the amazing story of a little 5 year old girly who was adopted from China by friend Tammy. 

It's a blessing to share the wonderful joy she has brought and something I love JEWELRY  representing our love for our adoptive children:)

Here's the link to click on-----   Born In Your Heart

Tuesday, July 8, 2014

Home

Yep, Brandon is here. We busted him out (not really) on Thursday,  July 3.  Actually, they were anxious to boot him out and then took over 4 hours to get everything ready and send him out.

Mother (me) must have forgotten or been OWED (I used to work in a hospital and can't recall that I ever "took  my time" to discharge anyone but I am betting someone may have thought that over my long career there.)

Let's just say "Paybacks suck."  Cause in my huge brain fart, I also took 3 children with me. 3 HUNGRY children, who were supposed to go to a picnic then watch fireworks. OOPS. Big OOPS.

'Cause Brandon's nurse took her SWEET ol' time getting us out of there, we arrived at 5 pm expecting 45 min or so?  4 hours and 10 minutes later, we missed said picnic and all but 1 (seriously) ONE firework.

Needless to say, Camden, Kat and Phoebe were NOT happy:(  Sorry kids, Mom, bad.

We did have another picnic Friday, then a campfire, the older ones got to go cray fishing with their Youth Group and have a yummy lunch of their catch.

Saturday and yesterday the home nurse came to test Brandon's blood level and today he had his follow up doctor appt. Basically he said life long blood thinners.  It can take up to a year for the leg clot to fully dissolve, we didn't realize that.

I go next week to get my labs done to see if I have this.  Doctor today said it's a dominate trait, meaning I will have it or not, there's no "carrying the gene" and not having it. I highly suspect I do have this so it won't be a surprise to hear that I do. And if so then testing moves on to the other children as well as MY siblings and their children as needed.

Otherwise I have 11 doctor appts, this week and next, not kidding ya-- all the kids go for their yearly physicals and I do them in lump appointments so those are on tap for this week.  Along with Paisley's yearly heart check up.  Makes me thankful that for the most part, we do have a healthy (and lively) bunch here.

We hung out last night with a wonderful adoptive family from Oregon, they were in our area and we talked adoption for HOURS:))) Lynne and family-- thanks for taking time to "hang" with us and we so enjoyed meeting you!!  (Sorry, no pictures, I had my camera but do you think I remembered to get a picture of all the kids? NOPE:(

That's what we are up to, what's everyone else doing so far this summer holiday??  

Thursday, July 3, 2014

Possible answer?

Biopsy is over and no results back yet, BUT-----

From the blood tests of first blood clot/hospitalization we have a very possible answer.

Missing proteins (inherited issue) in the blood which affect clotting.  Doesn't look to be something that can be "fixed" but more likely prevention of new clots forming with blood thinners for his lifetime.

Also likely-- testing of ME-- to see if I have this/carry it so we know if the other bio kiddos need to be tested. We have a blended family so if I am not the carrier then it will affect fewer children and not my siblings or their children, therefore easier to test me first.

I always had in the back of my mind the concern of "no family health history" for our adopted kiddos was so scary, an unknown.  Goes to show there's no guarantees in life, in adoption, in genes inherited.

Never would have expected this but so incredibly thankful for all your prayers-- they really, really helped.  I'll update if any results of biopsy come back with anything but I believe the doctors are fairly sure this is our answer to the mystery of the blood clots. 

Thanks again for your support and prayers- it really means so much:)

Wednesday, July 2, 2014

The Big boys

It's been a week or 2 about the "big boys" around here.

Derrik turned 29. WOW. Can't hardly believe that.  I feel so blessed to have my oldest son nearly 30 years of being his mom (and many other kids' mom, too:)

Jay turned 28.  Yep, close together birthdays, my two "boys."

Then, there's Brandon.   My current "problem child."  2 weeks ago he was hospitalized with a blood clot in his leg. He's an active, healthy 25 year old!

So, yes, I was shocked. I wasn't sure what in the world caused this. And it seems I am not alone. 

 Even after being treated and discharged, but not given the right meds to have his blood levels therapeutic there were no answers to what caused the blood clot. The idea was a genetic component/s from my side of the family:(

So Brandon arrived at my house Friday morning and I could tell he wasn't doing so well.  By afternoon I had him at a trauma center where he was immediately admitted. (Totally different place and much larger/experienced hospital than the first one he was admitted to).

He's got another (massive) blood clot. In the same leg.

He's not been able to get an idea even as of today, what has caused these clots. He's getting heparin to thin his blood, to hopefully avoid another clot forming, he's now got a filter so if any of the clot breaks off it will not be able to travel to his heart or lungs.

He's having surgery today in the form of a lymph node removal in  his arm, because it's enlarged and they are going to biopsy it to see why. I am storming my Father with prayers on this because they are looking for CANCER. Possibly leukemia.

Stop.my.heart----CANCER.  The very demon that has plagued my family stealing member after member in the very early times of their lives. My Dad, age 37. My cousin 41. My uncle in his 40's. My mother (she survived) age 36.

Truthfully this has blown me away. I've been strong. I've been faithfully and continually praying for God to spare my son.

My quiet boy. Skinny to the point of scrawny, he's a good guy. There's no way to know "WHY", nor will I ask-- because I trust in HIM for the reason of this season.

But I do know that I've been trying to carry this burden without many folks knowing. And there's where I have gone wrong.  Because I need to ask YOU-- will you? Storm the heavens with prayer for my son, Brandon?

Father hears and knows. He knows my heart and how hard it is for me to share and ask for help. I'm His work-in-progress, ALWAYS:)  And I know I have to let this out and ask you all to pray for us.  And no matter the results here, I will faithfully trust in Him and glorify Him for the outcome here with Brandon. 

Thank you in advance friends/family.

Knowing you care means so much.................

Thursday, June 26, 2014

Finding our groove

Yep, summertime comes with changes. Change in my work schedule ( to night shift) and the kids off of school.

Kids thinking they NEED stuff to do.

And sometimes they do--- but also, sometimes they have to learn it's okay to not have 24 hr entertainment scheduled for them.

The little girls are doing Vacation Bible School this week. Lots of fun there.

Phoebe also had an evaluation for her to have instruction for cane use. 

 It's NOT something she HAS to do, she's got enough vision to "get by" but in wanting her to have as much independence as possible it's important to teach her to use a white cane, not only for her to be able to navigate any unknown places when she's older but it will also identify her as a person with visual deficits for others to know and provide her with more safety.

And it's easier to learn at her age than to try to teach her when she's older. As usual, she totally drew in the instructor in her brightness and fun, sunshine like personality.

Someone else who was smiling today?  Paisley.

This week we had a follow up appointment with her rheumatologist.  I'll admit I was worried. Couldn't help it. Her mobility had decreased so much that she was unable to get her own sandal on her foot Sunday and asked for help. Something she NEVER does unless she HAS to.

As well, getting up our steps was a long, hard process, taking 10+ minutes to get up 13 steps and her really pulling/hanging on the handrail. It's just downright painful to watch her struggle some times. 

So I wasn't surprised when the doc said her hips are not good. We are going to do X rays to check them later this week, but her hip mobility is at about 0. She actually has to waddle to be able to walk forward, there's almost no movement at all of her hips. We will be referred to a pediatric orthopedic surgeon about double hip replacement:(

But one positive from her visit-- her knee was really swollen and flaring.  So doc injected it. And today Paisley came up the steps saying "Look at me running up the steps."  Such a funny girl, running up the steps:))

But seriously it took her about 2 minutes, with only holding on to the rail, not having to use it to pull herself up each and every step. HUGE difference for her.

And she's happier (aren't we all?) when she feels better and can move better, although I included this picture for fun, you see they aren't all smiles and sweetness- ha ha-- there's some snot dished out here for sure (And she's not the only one either)!

Speaking of moving-- not us, we are not moving. But my brother moved 2 YEARS ago and when he bought his house it had purple, deep purple walls--- incredibly U-G-L-Y. I told him-- don't worry about that, we can paint those walls. OIY. 2 years ago:(

Well---I had 2 days off and when I got off work one morning we took off.  It was a 2 day marathon of painting. Got the living room, up the steps, entry way all painted a lovely green/ tan shades. Started a yellow/ green combo in the kitchen. 

The kids had a blast, dad took some of them biking on the trails of a nearby park. Kat helped with painting projects, and Phoebe was thrilled to play all day with her cousin Jerry (age 7).  They played cars, pretended to shoot cars, played some more cars. 

Now there's no more purple on brother's walls, a soon trip will be for stenciling his kitchen and trim painting.  Then they can enjoy their walls, feeling like it's finally "their HOME,"  colors THEY like and chose, applied and live with:)

Chloe got herself in trouble this past week and regressed to pouting/sleeping for hours to avoid being in trouble. Have I mentioned it takes YEARS for adjustments with teen adoptions??

Yep, after going overnight with friends previously and me telling her she didn't even let us know she got there safe, not a peep from her the whole time and telling her very clearly that was NOT acceptable, she did it again.

And was called on it. SO she reacted like she used to-- sleeping/ pouting, not coming out of her room. Till we called her out on that........ 

Sometimes the burden of teaching, the fears of "will they ever get this,"  the lack of maturity is incredibly frustrating.  And yes, we understand they are teens, and many teens react in similar ways, not all behaviors are adoption related anymore. Some of it's just plain TEENAGERS.

But we plug away at the behaviors, because we have to. We aren't doing them any favors to allow things to slide. Because it's cute to see a 6 year old slurp food, not so cute at 17.  It's understandable that they come off as "in your face and space" because it's normal in their culture, but here they come off as rude.

The social lessons are some of the hardest and longest teachings we have had to do, and seriously they have even gone so far as to say "Nah" when told something they are doing needs to be changed or they will be offending people. 

 They don't want to believe us. FRUSTRATING for sure. (Did I mention they are TEENAGERS?)

Someone who is making better strides with listening and behavior-- Phoebe:)

Yep, she seems to be settling down and we have addressed many of her behaviors. 

 Now, do not worry, she still talks constantly, there's nothing gonna squash that spirit (nor do we ever want to do that to ANY of the kiddos) but the understanding of "We've got your back and we are telling you things to teach you, not so you can be in trouble for not doing them" is sinking in.  FINALLY.

It's good to see. Very good. 

She's got such an outgoing personality it's hard to see her struggle with understanding this whole "being parented is a good thing/bad thing" issue.

The girls were so funny when I told them I wanted pictures for the blog--- Kat Paisley and Chloe took "selfies", Chance complained when Kat caught him in the girls' room for his picture, oh goodness, he's in their room-- as if he never goes in there?

Their (Chance, Phoebe, Paisley, Kat) summer obsession has been playing their Nintendo games, since none of the teens are gainfully employed yet. And hanging out in their jammies. And sleeping in.....

All those things they "never" get to do during the school year.  

A nice break, a different pace, getting used to it and enjoying extra time with this crew:) 

Yep finding the summer groove. We do it every year..........